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Information for Patients
The ISTH-SSC VWF database manager regrets that he is unable to enter into personal correspondance with patients regarding their von Willebrand disease.
International and national haemophilia societies can provide further information about living with von Willebrand disease. The following links should provide some useful information:
World Federation of Haemophilia (WFH).
This site has access to information on von Willebrand disease and also has a links page providing access to the websites of national haemophilia societies.
The UK Haemophilia Society.
This site has extensive information on von Willebrand disease, which can be accessed via the 'Key Facts' link. The websites of other national haemophilia societies can also be accessed from this site.
Women Bleed Too.
This site contains a range of information aimed specifically at women with a range of bleeding disorders, including von Willebrand disease.
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